Proteus Family Network UK

Finding the answer…Supporting the need.

In loving memory of Michelle Gardiner 1997-2015 and all those who have lived with Proteus and KT and who are no longer with us…..we fight on…..’that’s just how we roll…’

THE UK SUPPORT GROUP for families and individuals affected by segmental overgrowth conditions. Specialising in Proteus Syndrome and Klippel Trenaunay Syndrome and welcoming enquiries from anyone who lives with an overgrowth condition 9.00am – 9.00pm, 365 days a year.

Support Line

 01785 661263



Klippel Trenaunay

Newly Diagnosed/Unsure?

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365 Day Support

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Family Weekends

We get together every other year over a weekend, usually in early summer. Families, young and old, from tinies to teens to those of us older but [...]

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