Useful Links

We collaborate with a number of other support groups, some of which you may find useful:

http://www.birthmarksupportgroup.org.uk

http://www.proteus-syndrome.org.uk

http://www.cafamily.org.uk – Provides advice,information and support to parents and families who care for children with any disability or special need.

http://www.carersuk.org – help and advice for carers.

https://www.changingfaces.org.uk – Changing Faces is determined to enable people who have disfigurements to develop high self-esteem and self-confidence, have access to the very best health and social services and enjoy equal rights and opportunities throughout their lives.

http://www.equip.nhs.uk – An NHS website which signposts members of the public to useful health and social care websites that have been quality-checked and has a directory of over 4200 support groups and services both national and local to the West Midlands and checked regularly.

http://www.gosh.nhs.uk/health-professionals/clinical-specialties/dermatology-information-health-professionals/refer-patient-dermatology-department

http://www.overgrowthstudy.medschl.cam.ac.uk/about-us – details of the overgrowth study work at Addenbrookes Hoapital, Cambridge with information on how someone with an overgrowth condition can access genetic testing.