Want to join the support group?

We are a registered charity, run by volunteers who have lived with Proteus or KT and so understand some of the worries and concerns. Our group exists to support one another as well as support research into the causes of overgrowth conditions and the identification of future treatment.

If you would like to join as a member, please complete the application form, found here and either email back or print and send in the post to the address shown on the form.

Members receive newsletters, a Family Directory with contact details of other members who are happy to be contacted and chat, research news and admission to a members only fb page.

There is no charge for membership, we exist by donation and fundraising events.

 Membership Application Form

Click here to download the application form.

To Apply for membership of members only Facebook page click here 

Contact Us

We're not around right now. But you can send us an email and we'll get back to you, asap.